CURRENT GOAL: She is working on feeding properly, going down on oxygen, and getting weined off Morphine and Versed.
PROGRESS: Happy Birthday to Maggie she is 1 month old today! We were transferred this week to IU-Hospital, which is just down the block from Riley Chilidren's Hospital. Our little girl is no longer a high risk case and can now hang out with less sick babies in a Special Care Unit! The new digs are nice, it's a newer facility so it is more asthetically pleasing to the eye;t he staff more layed back; the food still not tasty for Mommy!
Meds-Her Central line has been gone for about a week now, and she is fairing well with her wean. The staff has toyed around with it a little to see if she can take a more aggressive approach... to which Maggie said NO to. So they went back to her schedule I had mentioned in my last update. Yesterday, our new Dr. approached me about trying a different method. She thought that maybe we could be a little more aggressive with the Morphine wean, but not wean her off versed until we are home. That way we are only weaning one drug at a time, which could help her get home faster! I like the idea, and so we are trying it out.
Feeding- Well this continues to be an adventure, as of the beginning of this past week Speech had re-evaluated both breast and bottle, and we are still on the bottle, she is still aspirating on the breast. Yesterday, we had issues with her aspirating on the bottle. So our new Dr. and our new lactation consultant and I discussed some options... The Dr. at IU is willing to have her just have oral feeds 3 times a day... it can be breast or bottle. Lactation wants me to try breast with a nipple shield to see if that helps slow the flow of milk a little bit, a long with some different holding positions. So this weekend I am tasked with non nutritive breast feeding with the new holds and skin to skin time and then Monday we are going to try breastfeeding with a nipple shield. Maggie has struggled with getting her volumes up so Seana and I will be trained on NG Tube placement and feeding so that she can go home with a feeding tube if need be.
Oxygen-Good Bye Nasal Canula, HELLO room air! On Tuesday this week Maggie decided she was done with the oxygen and pulled her nasal canula off, her stats stayed stable so the staff decided to leave it off and see how she did....SHE DID GREAT! This was also the day of her feeding evaluation so they decided to put it back on so that they weren't affecting one with the other... after both her evaluations were done (one was on tuesday and one was on wednesday) they took off her nasal canula and she has been breathing with no assistance ever since!! YAY!!! Goal Accomplished!
NEW GOAL: Work on feeding and get volumes up orally, Wean off Morphine and then wean off Versed at home